Plainfield toddler with rare disease, family face long journey

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Two-year-old Noah Galloy (center) listens for his brother Brayden's heart as their parents Ryan (left) Jenn (top right) watch their

Two-year-old Noah Galloy (center) listens for his brother Brayden's heart as their parents Ryan (left) and Jenn (top right) watch in their residence Wednesday, Dec. 26, 2012, in Plainfield. Noah, who has a rare genetic disease, is going to Germany for a stem cell transplant. | Matthew Grotto~Sun-Times Media

Two-year-old Noah Galloy (center) plays computer as his parents Ryan (left) Jenn (right) watch their residence Wednesday Dec. 26 2012

Two-year-old Noah Galloy (center) plays on a computer as his parents Ryan (left) and Jenn (right) watch in their residence Wednesday, Dec. 26, 2012, in Plainfield. Noah, who has a rare genetic disease, is going to Germany for a stem cell transplant. | Matthew Grotto~Sun-Times Media

Two-year-old Noah Galloy (right) sips some juice as his father Ryan (left) stands kitchen their residence Wednesday Dec. 26 2012

Two-year-old Noah Galloy (right) sips some juice as his father Ryan (left) stands in the kitchen of their residence Wednesday, Dec. 26, 2012, in Plainfield. Noah, who has a rare genetic disease, is going to Germany for a stem cell transplant. | Matthew Grotto~Sun-Times Media

Two-year-old Noah Galloy (top center) poses for phowith his brother Brayden 11 (below) parents Jenn (top left) Ryan (top right)

Two-year-old Noah Galloy (top center) poses for a photo with his brother Brayden, 11, (below) and parents Jenn (top left) and Ryan (top right) in their residence Wednesday, Dec. 26, 2012, in Plainfield. Noah, who has a rare genetic disease, is going to Germany for a stem cell transplant. | Matthew Grotto~Sun-Times Media

Jenn Galloy talks about her two-year-old Noah (not pictured) their residence Wednesday Dec. 26 2012 Plainfield. Noah who has rare

Jenn Galloy talks about her two-year-old Noah (not pictured) in their residence Wednesday, Dec. 26, 2012, in Plainfield. Noah, who has a rare genetic disease, is going to Germany for a stem cell transplant. | Matthew Grotto~Sun-Times Media

Like a typical 2-year-old, Noah Galloy bounces around his family’s Plainfield home — driving his new “Toy Story” car from Santa Claus, playing with his older brother Brayden, or searching for his favored Winnie the Pooh stuffed toy. Despite the intravenous ports tucked under his …